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Welcome to the lucky few… That’s what we, the parents of children with Down syndrome, like to call ourselves because we truly are lucky. It’s one of those clubs you don’t initially want to be a part of, but once you’re in, you’re so glad it’s there. I’m Heather. I’m the founder and executive director of The Lucky Mama Project, inspired by my beautiful daughter Ivy. She is my light, and the heart of our family. I can’t imagine our life without her in it. She perfectly completes our family of four. https://images.squarespace-cdn.com/content/v1/6209cc247b9c0e69f81817f0/b0706742-4a10-4157-a1c8-c7df47878cf7/IMG_6873.jpg Our Story - Our diagnosis… I had a prenatal diagnosis when I was 14 weeks pregnant. I was terrified. We tried to do an amnio a few times but due to the circumstances, the risk was too high for us. It took weeks, months even for my husband and I to wrap our minds around having a baby with Trisomy 21. We weighed the options presented to us, and after working through many emotions, we prepared by learning as much as we could about Down syndrome. It was a long pregnancy filled with a lot of fear and worry. I worried about how our life would change, the health of our unborn child, and how I would bond with with my unborn baby. I can say that our life right now is much better than I imagined at that time. I have a beautiful little girl that everyone adores. I wish I could go back in time and tell my pregnant self how wonderful and normal our life would be with Ivy. https://images.squarespace-cdn.com/content/v1/6209cc247b9c0e69f81817f0/29fac98f-c5ab-4e9b-a2e9-f62c5433d412/IMG_7516.jpg Our Story - About Ivy… Ivy was born about a week early. She spent 17 days in the NICU and came home on supplemental oxygen and a nasogastric tube for feedings. It was hard but we adapted. She successfully weaned off the feeding tube and transitioned to nursing. She grew stronger and the oxygen went away too. Every milestone she hits is a big deal for our family. She continues to master each one, in her own time and loves to be cheered for when she does. She started walking at 20 months and is running, jumping and climbing everything. She loves music and dancing, animals, and playing with her big sister. Now she is in first grade and she loves it! She looks forward to going to school everyday. She knows all of her friends by name, and is learning in a general ed classroom alongside her peers. She continues to do many different therapies and enjoys dance class and swim lessons. 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Lucky Mama Project 2026 Calendar October is Down Syndrome Awareness Month We’re celebrating with the release of our 2026 Fundraising Calendar! This year’s theme is: “I am…” Because our kids have incredible stories, identities, and voices that deserve to be shared with the world. Grab a calendar for yourself or gift one to a friend—it’s the perfect way to spread awareness and hope all year long! Get your calendar HERE! https://images.squarespace-cdn.com/content/v1/6209cc247b9c0e69f81817f0/ea8f13b8-9805-4e1e-9fef-e37efff1f9ab/IMG_4725.jpg Donate/Shop https://images.squarespace-cdn.com/content/v1/6209cc247b9c0e69f81817f0/37471fe7-bda6-4353-80b5-cbb85af10b6e/ivystack+copy.jpg https://images.squarespace-cdn.com/content/v1/6209cc247b9c0e69f81817f0/0d7c44f8-d981-4259-9b11-9337976c1f46/ivy+copy.jpg https://images.squarespace-cdn.com/content/v1/6209cc247b9c0e69f81817f0/2187ff81-b696-4ac6-ae7a-d8138ce60e58/lilah+copy.jpg https://images.squarespace-cdn.com/content/v1/6209cc247b9c0e69f81817f0/22fdea75-8522-451f-80d4-225f7c9c5e96/bracelet.jpg https://www.theluckymamaproject.org/donate/shop/nonprofit monthly 0.5 2022-03-08 https://www.theluckymamaproject.org/donate/shop/thisislifebook monthly 0.5 2022-03-08